Monday, September 1, 2008

Bryan Samuel Turned Twelve, Special Needs, Down's Syndrome

Indeed the saying "Time and tide wait for no man" is very true. Bryan Samuel turned twelve on August 29th, 2008. How time flew by just like that - in the blink of an eye. It marked another milestone in our journey with our lovely son who is ever so happy and carefree.


Celebrating Bryan Samuel's birthday with his friends, school teachers and classmates each year never fail to fill my heart with warmth, joy and awe. It is awesome just thinking of how our good Lord has worked in his life and through him all these years in bringing great joy and blessings to the people around him including us, his parents. God has blessed Bryan Samuel with many good friends and teachers who are dedicated to teaching and guiding them - childen with special needs. I praise and thank the Lord for raising educators who choose to invest in young minds and dedicate their working life in helping to shape young lives. Kudos to all the educators out there!

Bryan Samuel is always so excited whenever we turn up at the school with food, his birthday cake and goodies bags for his teachers and friends. Looking at how his face light up, smiling from ear to ear, and running to hug us simply made our day.



Look at how happy he is ...........


Bryan Samuel with his teachers & classmates (J3A)






Bryan Samuel blowing his Birthday candles



Bryan Samuel cutting his birthday cake


Bryan Samuel sitting down to enjoy food with his classmates


Bryan Samuel and buddies snuggling up to one another



An entertaining video showing Bryan Samuel reading the story "Too Hot" and his classmates acting it out.

Hope you enjoy it as much as we did!



Tuesday, August 12, 2008

Beautiful & Special Moments, Special Needs, Down's Syndrome

Album featuring all the precious, beautiful and special moments captured of time spent with those whom we love and cherish. God's wonderful and priceless gifts to us - family, friends, love, peace and joy.


We would like to share these precious moments with you.

Enjoy!




Monday, August 11, 2008

Swimming Proficiency Bronze Test, Special Needs, Down's Syndrome

Wow! Praise the Lord!

The boys did it! They passed their Swimming Proficiency Bronze Test on Aug 10, 08. What a relief and great joy! I was a wee bit anxious, especially for Bryan Samuel, on our way to the swimming complex that morning. Though Bryan Samuel did very well during the past couple of weeks of training, he just wasn't in the mood and did not co-operate at all during the training session on the eve of the test. It was a complete disaster. Everything he knew, he did not perform properly. There was nothing else we could do except to leave the outcome in the Lord's hands and also to Bryan Samuel himself.

We said a prayer that morning and gave Bryan Samuel a pep talk to encourage him to do his very best. We were simply happy just to hear his signature reply -"Ok!"


God is faithful. He came through for us again. Bryan Samuel did very well during the swim test. When several of the other children failed and were called out of the pool by the tester, my heartbeat pulsated even faster ...... rooting strongly for both boys, in particular Bryan Samuel, to go on and do their very best.



Lo and behold! Both boys did very well and passed their Swimming Proficiency Bronze Test. I was so proud of them. My heart was filled with deep gratitude to the Lord for His faithfulness and great love for us!


Some photos to show:



Boys listening intently to the tester





Bryan Samuel walking ahead of the rest




Boys covering the 8 laps




Isaac doing the star float; Challenges finally completed




Bryan Samuel is proud of himself; Isaac in deep thoughts



Bryan Samuel looks happy; Isaac Alexander looks contented





Break after the test

Saturday, August 9, 2008

Boys frolicking in the pool ......... (Special needs, Down's Syndrome)
















Boys having a swell time at the pool !

Sunday, August 3, 2008

Children with Special Needs, Down's Syndrome

Looking back ........


Hey, Bryan Samuel and his special friends having fun at Happy Kids (July 2006)!!






Bryan Samuel & friends having great fun!




Bryan Samuel, Tim & Teacher Xinrong




Bryan Samuel flying like superman



It's a happy & safe landing for Bryan Samuel!





Bryan Samuel doing the balancing act





Isaac Out Fishing With Dad

Isaac went fishing with his dad on Friday morning, August 18, 2008. He was extremely elated to catch his very first sardine, bringing it home and having it cooked for lunch, which he ate with relish!

Isaac reeling in his prize with boat rod & spincaster




Isaac's first catch in hand!

Thursday, June 26, 2008

Family Outing to Botanic Gardens

We visited Singapore Botanic Gardens on June 21, 2008. The boys had fun visiting the new Jacob Ballas Children's Garden. It was not only informative but also fun for both adults and children. What a relaxing way to unwind over the weekend. Letting the children run loose in the beautiful garden with lots of activities to keep them occupied whilst the adults take a break.

Some photos to share with all.



Bryan Samuel taking shelter under a giant mushroom





Dad & Boys ..... Isaac Alexander tackling the rope challenge




Boys taking a pose after crossing the log





Boys under the branches & beneath the huge tree trunk

Friday, June 20, 2008

Special People – WE are ABLE

Sunday (June 1, 2008) 2.30pm

This was first written on Sunday, June 1, 2008. I was in a somewhat pensive mood that day. I sat thinking to myself. Blogging is interesting. It allows one to freely express one's views online especially in sharing anything general and fun. However, it takes guts to open up one’s personal life to the world, allowing friends and even complete strangers into one’s otherwise private world.

Then, I thought to myself, blogging could be used as a channel of blessing to the people around us and those farther away. It provides a platform for one to share and encourage others who may be going through what we have already gone through as we journal our life's experiences.


So, here I am today, sitting in front of my laptop - to continue from where I left off - moving on to the next topic I would like to share with all on my own blog (enough sharing about our vacation..... at least for now. More coming up next time...).


As I continue blogging, I brace myself for opening up and connecting with the world out there by blogging our journey with our son, Bryan Samuel, age 11 who’s born with Down’s Syndrome. The purpose is to share and encourage others, especially parents of children with special needs, that there is so much joy and love our children can bring. Of course, in reality, there are many challenges and sometimes painful experiences that we encounter in our journey with Bryan Samuel. However, there's also a lot to be gleaned and learned from them, and especially from Bryan Samuel - God's special and precious gift to us.


Looking back to the day when Bryan Samuel was born brought back lots of memories. To conceive again after 2 prior failed pregnancies brought on an indescribable sentiment. It was a cross between joy and apprehension. Joy at the prospect of an addition to the family. At the same time, I questioned my ability to carry the baby to full term and fear of another miscarriage.


The journey from start of the pregnancy till the baby’s arrival was filled with many challenges. It involved frequent visits to the hospital for injections as well as hospitalisation to sustain the pregnancy, not mentioning having to be confined to bed in between. Towards the last trimester, due to frequent fluctuation in my blood pressure and the fact that it shot up so high at one stage - endangering my life and the baby’s - my gynaecologist decided to deliver the baby 5 weeks early through caesarean section. Hence, Bryan Samuel arrived on August 29, 1996.


Like all new parents, I was elated at the arrival of our little bundle of joy, especially the 1st born in the family, thinking to myself that the ordeal I had gone through was after all worth it. Little did I realise that the real challenge in our lives had only just begun.


Our joy was short-lived, and it soon turned to grief. The doctor had not wasted any time in breaking the news to us that Bryan Samuel was born with Down’s Syndrome. It threw us completely off guard. We were utterly shocked and at a loss for words. We had no clue of what Down’s Syndrome was at all. I wished my doctor had been more sympathetic in his approach when breaking the news to us, but it was not to be. It seemed he was more interested in getting the news out and be done with it than to be concerned about our feelings. Hope slipped away and the future appeared bleak.


Visiting our little one in the Neonatal Intensive Care Unit (NICU), looking at him lying on his stomach, face turned aside, sleeping soundly with a feeding tube running through his nose, broke my heart to pieces. How could it be that he was born with Down’s Syndrome. He certainly did not look like one. He looked so beautiful, just like any other cute little newborn in the ward. What is Down’s Syndrome? That question lingered on my mind. I had to find out. When medical tests confirmed Bryan Samuel’s condition, I had to find out about the condition even quicker.


Heading straight for the library the moment I left the hospital, whilst Bryan Samuel remained in the NICU, I borrowed many books on Down’s Syndrome to find out more about the condition. Reading the borrowed books drove me deeper into depression and pushed me further down what seemed to be a dark and bottomless pit. The pictures in the books didn’t help at all. I was very discouraged and feared more for my child’s future. Why must this happen to our baby? What brought on this condition? What would the future hold for him? How would he be able to blend in with society? I had no answers to all these questions. I could only seek the Lord for answers to all these questions, clinging tightly to Him for strength and courage, beseeching Him to grant us grace and guide us in helping Bryan Samuel all the way.


God was good and faithful and still is today. When we first brought B. Samuel home from the hospital, we had to figure out a way to feed him. It often took him about an hour and sometimes, more than an hour, to finish a bottle of milk. With much perseverance and prayers, Bryan Samuel soon began to feed better. It was very encouraging.


However, there were other challenges we had to overcome. Born with a hole in his heart, Bryan Samuel had to be on medication to keep his heart from straining. There were unwelcome stares that we had to deal with whenever we were out with him. We knew we had to be strong for him. We decided not to allow these to bother us and channelled our attention and energy in helping Bryan Samuel.


By the time Bryan Samuel was 4 months old, God opened door for him to attend a special school, which helped greatly in his developmental growth. Every little progress that he made brought great joy and encouragement to us and it spurred us on further. Knowing the Lord is near and that He is with us all the way gave us lots of courage and comfort in moving forward. The Lord’s blessings and favour has been upon B. Samuel all these years. Even till this day, God has never failed us. Just when we thought Bryan Samuel is unable to do a lot of things due to his condition, God has enabled him to overcome life challenges and do things beyond our imagination and expectations. Indeed, with God all things are possible!


The one big lesson I learn through our journey with Bryan Samuel is unconditional love and never to give up. That's the beautiful spirit God has placed within our little one to constantly remind us of His great and unconditional love for us. Smile and be happy, that's what Bryan Samuel never fails to do. How I've learned from him! Smile, have faith and be happy ..... Smiling at the smallest and silliest things in life is therapeutic. It helps to keep all worries and sadness at bay - it costs us nothing to smile really. Exercise faith, which is something we do daily. It is important to have faith. Knowing that there is light at the end of the tunnel often grant us strength and courage to take the next step forward as we continue to run the race. Choosing to be happy and counting our blessings enable us to take our eyes and mind off worldly cares and to appreciate the things in life, however big or small. These are key elements that help us in our journey in life even when things do not seem to go right at times. It's the choices we make that bring about a difference in our lives - either positive or negative. Hence, we choose to be optimistic, thanking and praising the Lord every day of our lives, knowing that His love and grace is sufficient for us.


Here's a video clip of Bryan Samuel singing "Jesus Loves Me".



The song “Stop Right Now” by Spice Girls’ playing loudly in the background jolted me back into the present. Our beloved son, Bryan Samuel, was dancing away to the song, enjoying every moment of it. That was, after all, an item that he’s familiar with - one that he has gone around performing with the dance group that he’s a part of. So you know, this dance group is made up of children with different aspects of disability, but there’s a common trait amongst them i.e. they’re full of energy and they all simply love to dance. They never give up.



Just a short while ago, Bryan Samuel had disappeared into his own bedroom. Wondering what he was doing, I went to check on him and found him putting on his school attire and shoes on his own. He is very excited. He simply could not wait to leave for school. He is very eager to meet all his special friends from the school’s cheerleading team - the Mighty Giants - of which he's part of. They are scheduled to perform at Ngee Ann City Kindness CheerFest 2008 from 4.30pm to 8.20pm. Several more performances followed thereafter.



As I continue to watch Bryan Samuel dancing away to Spice Girls’ song, I mused to myself “Isn’t he lovely. His body swaying fervently to the music and he’s enjoying every moment of it, dancing with much gusto. I’m so proud of him. We have come a long way…. or should I say, he has come a long way, at least in our lives. Wow! How he’s grown, and how time has slipped us by. Bryan Samuel is now 11 years old, going on 12 this August and his brother, Isaac Alexander is already 7 years old.



Here are some photos taken during one of the performances.





Mighty Giants Performing At Singapore Youth Festival Carnival

Vivocity on Saturday - July 19, 2008





Bryan Samuel & Friends From Mighty Giants



_________________________________________________



More photos of Bryan Samuel & Isaac Alexander





Boys in a Kuala Lumpur hotel (Malaysia)




Boys dancing away ....



Boys modelling for the camera




Thursday, June 5, 2008

Enroute from London to Paris and Brussels, Belgium

We took the high speed Eurostar from London Waterloo Station direct to Paris on October 17. The journey took only approximately 3 hrs with the train speeding at 250 km/hr.







On arrival at Gare du Nord Railway Station in North Paris, we made our way to The Altona Hotel located in a classic style, beautiful Parisian building, close to and 15 minutes walk from Barbès-Rochechouart Metro Station, which provides rapid access to Opera Garnier, Champs Élysées and Sacré Cæur.



We checked-in to the hotel hoping to rest a while. We had planned to venture out in the evening to find our way around Paris on the first night. However, on reaching Altona Hotel, we were greeted by a pair of rather flustered looking twin brothers who kept lamenting that their hotel was overbooked for that day. They then shunted us down the street to their partner hotel. The hotel was not only old, but also smelt of mildew and located in a busy and noisy wet market. The hotel room was very small and smelt of cigarette smoke. The room ventilation was very poor and there was hardly any room for us to move around and to place our luggages. The toilet was also very small and there was mildew at every corner of the toilet. It was simply unpleasant and uncomfortable. We had no choice but to stay at the hotel for the night as we were already tired and hungry.


After a short rest, we made our way to Chatelet Les Halles Metro Station. We had our dinner at Forum des Halles, shopped a little and bought some sandwiches back with us to the hotel on our first night in Paris.


Took some pictures at the Eglise de Saint-Eustaches, the church where French King Louis XIV received communion. It was also the funeral sanctuary of the mother of the famous composer Mozart.





The next morning, we made our way to Altona Hotel and insisted that the owners transfer us back to their hotel for the rest of our stay in Paris. After all, we had reserved the room and paid for it in advance from Singapore. After much persuasion, the owners relented. What a relief for us to get away from the other hotel.

Lessons learned: Room reservation made in advance through the internet for hotels in Paris is not equivalent to room physically reserved for you. The internet reviews we read about the ruse often used by the owners of Altona Hotel by shunting their guests to their partner hotel, perhaps in the hope of earning some extra bucks, is very TRUE and REAL. So be cautioned!

After we settled our transfer back to Altona Hotel, we took the Metro to Bir Hakeim Station, the nearest station to the Tour Eiffel where the famous tower is situated. We had a good view of Paris from the Eiffel Tower. It was very cold just standing at the mid-level of the Eiffel Tower , but the view was simply breathtaking.



Thereafter, we crossed the River Seine to Jardin du Trocadero. The place came alive and packed with many people attending a carnival that was taking place then, so much so that it was impossible to take a glance at all the golden statues.

Oh .... and yes, the stand alone kiosk along Pont D'Lena, River Seine sells very yummy chocolate and banana crepes. It was superb, especially when served piping hot under such cold weather. Mmmm.... I'm salivating just thinking of it.


Below are some photos we took during our visit to Pavillon Sully Musee du Louvre, the awesomely huge historical building. The queue to the Gallery was too long and it was getting a little late. Hence, we decided to spend our time exploring the spacious surroundings where several big fountains and the large La Pyramide stood sandwiched between the buildings.





We took the underground Metro to de L'Etoile where the Arc De Triomphe Champs stood majestically at the cross roads of Champs Elysee. Going beneath the Arch itself was really an experience. We also managed to catch the Bastille Parade by World War II veterans. Some pictures taken with French WWII veterans to share with you.





Most unfortunately, the entire Paris Metro was paralysed by a massive strike that was to last 3 days. Not a train was operating, so we had no choice but to take a Paris taxi to Marne la Vallee where Euro Disney was located 80 km outside Paris. It was a cost us approximately Euro 170 (equivalent of approx. 350 SIN Dollars) for both ways, which is the most expensive taxi ride we have ever taken. Not only did were we not prepared for the sudden strike, but we also did not foresee that the situation would be that bad. On the way back, we literally had to stand in the cold for almost 2 hours in the taxi queue before a taxi would turn up to take us back to our hotel in Paris. It definitely wasn't a pleasant experience for us, especially under such terribly cold weather and when we were all famished and tired!

Overall, our vacation in Paris was well spent visiting all the famous and historical places that we had been wanting to see, travelling like the local Parisians. It's an experience that will be with us for a lifetime. The only major setback is the language issue as the Parisians will only communicate in French. We also wished that the streets and train stations would be cleaner and washrooms are conveniently located. Also, if only the hotel rooms would be a little bit roomy and clean, and there would not be any major Metro strike since tourists like us only had that number of days to spend in Paris and as such, time is very precious. Not to mention, that everything is pretty costly in Paris too.



Enroute from Paris to Brussels, Belgium



On October 19th, we took the Eurostar from Paris Nord to Brussels, Belgium. We were expecting to find a somewhat old and unclean environment, having read not so nice reviews about Brussels on the internet. What a pleasant surprise when we arrival at gare du Midi station. It was wonderful simply to be greeted by modern English songs playing in the background. The station was surprisingly cleaner than the Metro stations in London and Paris. The street was quiet, but clean and safe. It took us less than 10 minutes to get to Euroflat Hotel. We had secured a very good deal (from Singapore) for a comfortable hotel room with an attached kitchenette and ensuite bathroom/toilet. The room was not only spacious, but also clean and comfortable though the bed mattress was a little too soft, but we were just thankful for such a nice and reasonably priced accommodation to rest our tired bodies.



The next day, we woke up early and went on a guided tour to Amsterdam. The busload of tourists were from different countries. Some came from Brazil, Malaysia, Spain, etc. Gabriel, our tour guide for the day was very experienced. He constantly filled us in with historical background of the beautiful places we visit, most of which were captured on video. Will share that video recording with all later.

We visited Luxembourg the following day (October 21, 07). It was especially cold (about 6 degree celsius) in the towns of Namur and Dinant situated in the Wallonia region by the famous River Meuse that winds through the borders of both France & Belgium.


Further east, we reached the town of Han-sur-Lesse in the Ardennes region of Belgium where we tasted the best fresh trout ever. It was simply delectable! What with all the fastfood and stuff when we first arrived in London.

Isaac with horses in the Ardennes, Belgium


Isaac feeding Ardennes horses


Aren't these close up candid shots simply beautiful!